HAPPY NEW YEAR
Update: Doctor couldn’t refute the fact that there was no measurable tumor in the last CT scan. He pointed out things that could indicate cancer, but all could be something else much less sinister. He had to agree that my son looked like he was now going backwards, getting sicker it seemed by the chemo and not being helped. He agreed to skip a chemo which would make it about a month break. We decided to make it a month break from all Dr. appointments and other things. Does this mean he doesn’t have cancer, no – but it does mean all is going so well that we could afford to take this break. It might eventually turn out that there was a misdiagnosis from the beginning, but my son was seriously ill in November 2024 when he first went to the ER. From cancer, or a massive abscess – no one might ever know for sure. We are going to go back to chemo on the 7th. of January and the doctor is going to reduce the potency of the chemo. I believe we might know more if again at the next CT scan there is still no measurable tumor. Thank you for your prayers, we have needed them and I would ask till we can say it’s gone, never was, or is in remission please keep praying.

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Just a couple today. Last CT looked good from my perspective, the oncologist will tell us about it in a couple days when we have our next appointment. There were some really good “findings” on the report and I think we are going in the right direction. He is weaning off the pain meds, and walking better. As I might have mentioned he lost all his insurance at beginning of November and he has been accepted for financial aid and charity care. However, he is talking about going back to work, maybe as soon as March! Prayers appreciated. Thank you for each and every one.

Happy Thanksgiving. Hope you have a wonderful weekend!
MRI confirmed things much better than with first MRI, but really didn’t compare it to any of the CT scans. So oncologist ordered a CT scan, to check some of the things the MRI was indicating, including that the tumor was not solid and lymph nodes were good. That just happened last Friday (the CT scan).
We know these different tests work different ways, but MRI is also saying there are not enough margins to deal with the tumor and the location of where it is (although at least 75% smaller) is of concern. MRI did say the tumor might not be infiltrating, but leaning on things, and also there was fibrous residue. Right now the suggestion is to continue chemo and shrink it even more. Son continues to do well, has reduced his pain meds again and still hoping to go back to work by March.

MRI results mixed. Some things are better and some about the same. Nothing I think was “worse” than it was before. Surgery not looking like an option for several reasons, but mostly because there doesn’t seem to be enough “margins” for a clean removal, plus where the remaining tumor is located. There were things that were much better than last MRI though and it did give us information that was helpful to know. If I get a better idea of what’s going on in simple terms, I’ll let you know.
The hospital system has approved financial aid for my son through 2026, so that he can continue his treatments. He will be able to have chemo and stay with his doctors and get his RXs from the hospital system without charge. Anything outside of the hospital system is not covered, including treatment of his feet. We are still trying to work on a solution for that.
Additionally, oncologist wants a new CT scan and that too will be covered as long as we get it in their system. I believe some of the results of the MRI might be different than the last CT scan and he wants to compare the results. Thanks again for all your prayers!

We went for the MRI on the 4th. No results yet. When we tried to get to see his in network podiatrist, we were told his insurance was cancelled by the receptionist. We had no notice of this happening and it was quite embarrassing. We left without care and thought of course it was a mistake. It wasn’t. They just cancelled it without notifying him and they tried a few things at his work HR dept. but could not reinstate it and now he has to do COBRA or go back to work to have insurance. We have applied for charity care, which they say will pay for his chemo treatments, RXs and Drs as long as they are within their system and they accept it as payment. I have had conflicting information about this “care” and we have not yet been able to confirm it really will cover any or all of that.
We are hopeful that it will pay for the MRI which was inside their system; but after his insurance was cancelled.
Thank you to the prayer warriors, please pray that he can continue his care or some other resolution presents itself. This part of it is very stressful, not knowing if he can continue treatment or not. By the way the COBRA cost is overwhelming at close to $900 per month.

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